As said so well by my second daughter, Claudia, climbing a mountain is very similar to fighting a disease; there are many ups and downs along the way, but the goal is to never give up and to reach the summit. This I can say is done by "believing" and accepting the strength and support from the loved ones around you.
Here is how it works and it actually starts the night before with the Better Life Patient Journal. Before getting into bed, you spend 5 minutes with your journal to review the day that just ended and also prepare for the day ahead.
For many patients, the day doesn’t start productively. In fact, many times we are just trying to get our bodies going and survive the morning. This is what led us to add a section of our journal to track both your mental and physical wellness throughout the day. Making this habit will allow you to figure out what the best time of day is for YOU is.
As a stage 4 colon cancer patient one needs to be grateful for each and every day; as we all should in life. When you are first diagnosed with such an advanced illness with no symptoms, “shocked” is the only word to describe how one feels.
The problem that many chronically ill patients have, is that we can’t be perfect and even if we have all the energy in the world, there are going to be days that our systems either get pushed aside or we just won’t be able to follow them for a variety of reasons.
We know a good morning sets us up for a good day. An entire day can be determined by the first hour in which we wake up and when you feel unwell or unmotivated it is not easy to get things going right. So let’s set ourselves up for a good morning.
We took time to look into some of the habits of the most successful people in the world and there was a similar thread between many of them that are standard practices, meditation. They spend 10 or more minutes every day to clear the head, relax their body, and most importantly gain the correct “headspace” balance with their lives
If we can spend just a little time getting ourselves ready for the week ahead on a Sunday, we might be able to make the rest of the week a little smoother, which will lead to less stress, better health, and subsequently, a better life.
So what can we do to battle the fatigue and pain that we might experience any day? We have to fight back, but there are simple things we can do during the day that can make living with a chronic illness a little bit easier. While these five tips will likely not make a huge difference in your life the day which you need to fight, they can make the day a little more bearable.
But in the past week, on schedule with when I’d typically get the seizures (they stick to a schedule and I’ve tracked them since I first started having them even though I don’t anymore), I’ve had some moments that make me feel like it’s all coming back.
Recently we launched our Kickstarter for Chronically Better You, one of the first lifestyle systems for chronic, mental health, and substance abuse diseases. Our team knows how hard life can be when living with a life long disease because we also live with life long diseases.